Resources: Advocacy Organizations

• Aging Links
• Advance Care Planning: www.compassionandsupport.org
• Aging with Dignity (Multiple language translations for the “Five Wishes” available): www.agingwithdignity.org/translations.html
• Alzheimer’s Association: www.alz.org
• Association for Death Education & Counseling: www.adec.org/resources/index.cfm
• Association of Area Agencies on Aging: www.nysaaaa.org
• Brookdale Center on Aging: www.brookdale.org
• Brooklyn-Wide Interagency Council of the Aging: www.linkingseniors.com/
• Elder Law Resources: www.elderlawanswers.com
• Eldercare Online: www.ec-online.net
• Friends and Relatives of Institutionalized Aged (FRIA): www.fria.org/fria
• Medicare Comparison of Nursing Homes: www.medicare.gov/NHCompare
• Medical Orders for Life-Sustaining Treatment (MOSLT): www.health.state.ny.us/professionals/patients/patient_rights/molst/
• Medicare Rights Center: www.medicarerights.org
• National Council on Aging: www.benefitscheckup.org
• National Hospice & Palliative Care Organization: www.nhpco.org
• National Stroke Association: www.stroke.org
• New York City Department for the Aging: www.nyc.gov/html/dfta/html/home/home.shtml
• New York State Department of Health: www.health.state.ny.us
• New York State Office on the Aging: www.aging.ny.gov
• Nursing Home Compare-Geography Questions: www.medicare.gov/NHCompare/Home.asp
• SelfHelp Community Services: www.selfhelp.net

• Caregiver Links
• Alzheimer’s Association: Caregiver Stress Check, Resource List: www.alz.org/stresscheck/
• Caring Connections: Caring for Someone: www.caringinfo.org/CaringForSomeone
• Caregiver/Support — Alzheimer’s Caregiver & Resource Center: www.nyc.gov/html/dfta/html/caregiver/caregiver_training.shtml
• Family Caregiver Alliance: www.caregiver.org
• National Alliance for Caregiving: www.caregiving.org
• National Family Caregivers Association: www.thefamilycaregiver.org
• Net of Care: Information & Resources for Caregivers: www.netofcare.org
• NYSBA Family Health Care Decisions Act Information Center: www.nysba.org/fhcda
• Jewish Association for Services for the Aged (JASA): www.jasa.org
• Institute for Puerto Rican & Hispanic Elderly, Inc.: www.iprhe.org

• Disabilities Links
• Lifespire: www.lifespire.org
• YAI National Institute for People with Disabilities: www.yai.org

• Legal Links
• American Bar Association Commission on Legal Problems for the Elderly: www.abanet.org/aging
• National Academy of Elder Law Attorneys (NAELA): www.naela.org
• New York State Bar Association: www.nysba.org

• Medicare and Medicaid Links
• Centers for Medicare and Medicaid Services: www.cms.hhs.gov
• Medicare — The Official U.S. Government Site: www.medicare.gov
• Medicare Interactive: www.medicareinteractive.org
• Medicare Rights: www.medicareright.org
• New York State Department of Health Medicaid Information: www.health.state.ny.us/health_care/medicaid
• Social Security Administration: www.ssa.gov

• Chinese
• Alzheimer’s Association: Resources in Chinese: www.alz.org/asian/chinese.asp, www.alz.org/professionals_and_researchers_chinese_communities.asp
• Caring Connections: Chinese Outreach Guide (English): www.caringinfo.org/UserFiles/File/ChineseOutreachGuide/ChineseOutreachGuide.pdf
• Caring Connections: Understanding Advance Directives (pdf file, bottom page): www.caringinfo.org/Resources/Brochures.htm
• Chinese American Compassionate Care Coalition: www.caccc-usa.org, www.caccc-usa.org/page8/page40/resources.html
• Ethnic Elders Care: Chinese Americans and Dementia: http://www.ethnicelderscare.net/ethnicity&dementiachinese.htm
• Family Caregiver Alliance: www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=529
• Hospice Foundation of Taiwan: www.hospice.org.tw/2009/english/index.php
• New York City Department for the Aging: Caregiver/Support — Alzheimer’s Caregiver and Resource Center: www.nyc.gov/html/dfta/html/caregiver/caregiver_training.shtml
• Society for the Promotion of Hospice Care (Hong Kong): www.hospicecare.org.hk

• Japanese
• Ethnic Elders Care: Japanese Americans and Dementia: http://www.ethnicelderscare.net/ethnicity&dementiatitle.htm

• Korean
• Alzheimer’s Association: Resources in Korean: www.alz.org/asian/korean.asp
• Family Touch USA (Well-Dying Preparation School; lessons on improving quality of life and death; Korean only): www.familytouchusa.org
• The Korean Community Services of Metropolitan New York, Inc. (Entitlement Enrollment and Health Benefits): www.kcsny.org
• New York City Department for the Aging: Caregiver/Support audio/video Resource in Korean: www.nyc.gov/html/dfta/html/caregiver/caregiver_training.shtml

• Vietnamese
• Alzheimer’s Association: Resources in Vietamese: www.alz.org/asian/vietnamese.asp

• South Asian
• South Asian Council for Social Services: www.sacssny.org/index.htm